Remembering to say NO…

Hello, yes I’m still here and still alive.

I’ve been wanting to write this post for a few weeks now but have struggled to find time when Foggy Frog isn’t being a pain!

With so much going on, writing this post has been a good reminder to me that I need to remember to pace myself and listen to my body. Although physically I’ve been able to do so much more, I’ve found mentally I’ve been struggling the last few weeks.

This means it’s time to reevaluate again and find what I can step back from to achieve balance again.

Pacing is such an important part of my management strategy for the pain and other debilitating symptoms, such as the fog and fatigue. With the changes in my medications over the last few months my pain levels have been lower and, as I said above, I’ve been able to do more than I have in over 3 years.

I’ve joined a gym and have found that doing something most days (generally a stretching based class or a swim) has been beneficial for my pain levels as well. My step count is back to an average of 7,000; a level I haven’t managed since December 2014.

I’m still working on the Australian Association of Environmental Education Biennial Conference occurring in October, and my upcoming book launch on 24 September… less than a month to go! This has meant meetings almost every day about one thing or another.

As you can probably tell there’s a lot going on at the moment. In fact, it’s a little too much so I’ve been slowly stepping back from the conference planning and trying to work out what the essential things are for me to get done for the book launch to be a success.

I want to keep up my physical activity, as I’m trying to make sure I’m as healthy and strong as possible for when we start trying for a family (something we’re seriously talking about at the moment). So that means saying No to some of the other activities in my life.

Right now I’m saying NO to:

  • taking on any more for the AAEE Conference planning
  • to other volunteer opportunities that don’t have any connection to possible paid work in the future
  • meetings I can postpone until later

I’m saying YES to:

  • time with family and friends
  • actions that will progress the book launch
  • actions that will help me be healthier and stronger (exercise, diet, rest)

What do you say No to in order to say YES to the things that matter?

I’ve joined a Gym! Exercising with Chronic Illness

A lot’s been happening around here lately! Preparations are underway for the Foggy Frog and the Pain Gang Book Launch and the AAEE 2016 Conference.

I’ve also added a bit more variety to my exercise routine by joining the new local gym (Council owned and operated).

The main reason I’ve joined is so that I could add swimming into my exercise routine but I’m also going to try out some of the classes they run.

Obviously, I’m going to focus on pacing and aim to not overdo it by adding too much too quickly but I’m very excited to have a bit more variety in what I’m able to do.

To date, my exercise routine has consisted of walks and riding my electric bike (or the stationary bike if it’s raining). I was doing some stretching and yoga, but this was very random (I wanted to do it but got bored of the same stretches over and over).

At the new gym I have access to an internal pool, aqua aerobic classes, body balance and mobilise (low impact stretching and weights) classes, and other gym equipment if I need it.

My plan is to use the pool twice a week, and try out the various low impact classes. In fact, I’ve already started…

After my swim on Monday...
After my swim on Monday…

I swam (8 laps of slow breast stroke) yesterday and today I tried out the Mobilise class. The class is stretching and light weights. I paced myself during the class; doing less repetitions, not using any weights and taking breaks when I felt I needed it. We’ll see tomorrow whether or not the class was too much for me but I think it was ok.

Outside of the gym, I’ll still ride at least once a week and go for walks with E (we’ve actually started playing that Pokemon Go game which has got us out of the house together more often).

The view from halfway through our walk on the weekend
The view from halfway through our walk on the weekend

Thanks to my current medication routine I’ve had less pain and slightly more energy than usual lately which has been great for allowing me to be more active.

What exercise do you do on a regular basis?

P.S. You may have noticed I didn’t post last week, because of everything going on at the moment I’m likely to be posting either once a week or fortnightly for the foreseeable future.

Are you feeling better? You’re looking good!

The other day, E and I were out celebrating the birthday of one of our friends. It was a dinner and dessert event, which meant a late night for me.

Because I knew we were having a late night I’d spent most the day doing quiet activities like reading and building the Lego I got for my birthday. Even though these were the main activities I did that day by lunch time I was struggling to keep my eyes open and my pain levels were rising.

I spent most the afternoon on the couch resting and thankfully I was feeling reasonably well when it came time to head to dinner. Still low energy and slightly raised pain levels, but not bad enough that I couldn’t focus at all.

At dinner, the venue was quite loud and I did struggle with focusing on conversations so didn’t even bother trying to keep up with conversation at the far end of the table. I did chat a bit with those at my end of the table but mainly just tried to listen.

When we got to where we were having dessert it was quieter so I began to join in the discussion again. At this point someone asked me if I was doing better because I looked a lot better than I had before.

Now, I’m always hesitant to answer this question.

Yes, at the moment I’m managing to do a lot more than I had in the last 3 years. I’m working and I’m socialising more. My energy levels are (ever so slightly) better than they have been (more stable), meaning I’m crashing less often, and my pain levels are relatively stable (although they’re beginning to fluctuate a lot more now that winter is here again).

If I just compared how I’m doing right at this moment with how I was 6 months or 2 years ago my answer would be a resounding YES, I’m doing better.

But I’ve felt better before, for a month or two, and then had a major crash which took me back to worse than I was to start with so I don’t want to jump the gun and say I’m doing better yet.

I believe the Testosterone cream is helping with my energy levels at the moment, but I am concerned about the side effects if I stay on it long term and I really want to have children at some point.

E was frustrated with me that I wouldn’t give a clear Yes answer to our friends and that I deferred to him and asked if he thought I’ve been doing better.

I did this because, up until recently, he’s always been able to tell (even before me a lot of the time) if I’m doing too much and about to crash. It seems that I’ve been able to perfect my ‘well’ face (the one I use to cover the fact I’m struggling) to a point where even he’s not noticing as quickly when I’m struggling with things.

That night out, I looked like I was doing well. For some periods of time I was, my energy levels were fluctuating dramatically going from able to focus to complete zone out several times during the mean. Normally E would notice these zone out times, but it appears he didn’t that night…

Do you struggle with people assuming you’re better because you ‘look’ better than before?

How do you decide how much to share?

Challenges and Lessons from our 20 Week No Buy Challenge

We’ve reached the end of our 20 Week No Buy Challenge and over the weekend Rach and I caught up to celebrate our successes.

In keeping with the No Buy theme, we celebrated with a homemade lunch of soup and sourdough bread with a glass of sparkling wine followed by homegrown peppermint tea and homemade peanut butter cookies.

Celebrating the end of our 20 Week No Buy Challenge with homemade soup and sourdough and a glass of bubbles...
Celebrating the end of our 20 Week No Buy Challenge with homemade soup and sourdough and a glass of bubbles…

As we ate we discussed the challenges we faced during the 20 weeks and what we felt we’d learnt.

My biggest challenge was sticking to the rule of not eating out if I was alone. There were several days where I found myself out and about longer than I had planned to be and in a position where I was contemplating takeaway food. Luckily each time this happened I either made my way to my mum’s and ate there, or someone was available for me to eat out with so I didn’t actually break the rules.

My second biggest challenge was accepting that some things that at the beginning of the challenge I classified as non-essential became essential purchases during the 20 weeks. The t-shirt I’m wearing in the photo above was purchased during the 20 week challenge but it was an essential purchase as I lost at least 3 of my t-shirts and 2 dresses to old age (they became see-through or massive holes that weren’t worth repairing were made while carrying big loads of things into the house). I also gave away a couple of t-shirts because I wasn’t wearing them (they weren’t comfortable on me or they didn’t go with enough of my other clothes). Thus the new t-shirt in the photo above…

Having said that, none of the old clothing went into landfill, I have either cut them up for rags (the see through and holey ones) or I donated them to charity or someone I knew who would get more wear out of them than I was.

Lessons Learnt

I’ve struggled a bit with identifying the lessons I’ve learnt during this challenge, mainly because I didn’t find it all that difficult to comply with and because a lot of what I ‘learnt’ I already knew (the challenge just reinforced it).

The main things it reinforced for me were:

Always prepare for the unexpected.

I could have avoided the unexpected needs for eating out by always taking at least a small snack with me when I leave the house. I did do this most times and it saved me a few times from having to buy something. I also took my zero waste eat out kit (straw, cloth napkin, bamboo spork) everywhere with me and used it on several occasions to avoid using disposables and most trips I took my keep cup as well.

If you can identify your values, it’s easier to say ‘No’ to the things that don’t fit with them but it’s also important to be aware of other people’s values as well.

The No Buy Challenge fit well with my values of being conscious of the impact my actions have on the environment and the wider community. There were several purchases we made as a family (E wasn’t participating in the challenge) that, if it was just me, I would not have made but that were made because they fit with E’s values. There were other purchases we considered that I said No to because they didn’t fit well with my values and I couldn’t see any long term benefit for anyone in the family.

Each of us are individuals and we need to make compromises at times if we are to maintain healthy relationships. We need to set our own boundaries about what is acceptable and what isn’t.

Buying is the cultural norm and it’s difficult to move away from these habits.

Although I’ve never been a big spender, participating in this challenge made me more aware of the times where, in the past, I would’ve just made a purchase without really thinking about it. Even most of my few purchases during the challenge (the earrings early on, a duplo set and a few children’s books secondhand, and the t-shirt mentioned above) were made without much thought about them before hand. It was only after I bought them that I actually considered what they meant in terms of the challenge.

Rach had a lot more trouble with this than I did, there were several times during the challenge where she contacted me because she was considering a purchase and needed to discuss the options and whether they were actually essential. She also found that she enjoys shopping and for that reason alone it was difficult to stop.

Not buying new things makes you appreciate what you have.

Both Rach and I removed things from our houses during this challenge. Rach gave several bags of clothes to charity and took the time to assess what she has in her wardrobe. I, as mentioned above, lost several items of clothing to old age and gave away a few items that I didn’t wear.

We’ve both realised that we have enough, and for some things (clothes in particular) more than enough, in our lives. We are grateful that we live in a society where we have choices for clothing, shoes, kitchen appliances and other household items. We are not living below the poverty line and don’t need to struggle to meet our basic needs.

I like making conscious choices that align with my values.

Although it takes more time, during this challenge I’ve added several more homemade items to our lives. As well as the laundry liquid, cloth napkins, peppermint and fruit we already make or grow, I’ve been trying my hand at making my own sourdough bread (so far no reactions) and other ‘old fashioned’ recipes that are better for my health and the environment.

Although there are a few purchases I now need to consider making (new underwear and sandals to start with) I’m still going to be conscious of my purchases and my allocation of my time and resources. This No Buy Challenge has helped me to progress my larger challenge of living a simple, sustainable and meaningful life.

Did you participate in the challenge?

If so, what did you learn? If not, would you consider a challenge like this in the future?

Share Your World – Week 7

Jumping straight in today so here we go…

Share Your World – Week 7

What are you a “natural” at doing? 

I’m a natural at engaging with babies/younger children. When they’re really young, I can usually get them to settle in my arms. Older, they seem to be attracted to me and want me to participate in their adventures. I’m enjoying spending more time with my friends children these days and I really can’t wait until we’re ready to try for our own.

Would you prefer a one floor house or multiple levels?

Definitely one floor. Our current house has only one step down across the middle of the house but even that means I can’t just put Mr Vacuum on to run around the whole house… He just focuses on the bottom floor (kitchen, family room) most the time.

Mr Vacuum resting after cleaning the floor :-)
Mr Vacuum resting after cleaning the floor 🙂

I wouldn’t want to drag washing up and down stairs and everything is just so much easier on one level.

What was your favorite subject in school?

My favourite subject at school was music. I participated in school musicals and other events. It was a great break from the more serious maths, english and science I focused on all the way through to the end of year 12.

At university, I focused on subjects related to the environment and sustainability.

Complete this sentence: If only the rain.. came regularly year round. It would save me so much energy if the rain came regularly enough that I didn’t have to worry about watering 🙂

What are you grateful for from last week, and what are you looking forward to in the week coming up?

I’m grateful for the time I got to spend with my friends and their children.

In the next week I’m looking forward to catching up on some much needed work (supposing this relief from extreme fog stays – I can focus enough to do a little work again now).

Zero Waste Purchases: No Buy Challenge Update Week 11

I did some shopping this week…

There, I got that off my chest. I didn’t break my rules for the 20 week no buy challenge, but I did buy things I wouldn’t normally buy (they were on my to-buy list a long time.

If you’re a regular reader you’d be aware that I’ve yet again been trialling new drugs and suffering from very frustrating side effects that are impacting on my quality of life.

In particular, the brain fog (which I had got to manageable levels) has been so bad I’ve pretty much been unable to do any work for the last few weeks apart from attending meetings (listening but not contributing as much as I usually would) and writing here on the blog.

Yesterday, when I came onto the computer to do some work (I didn’t manage to actually do any work in the end)* I got completely distracted. Don’t ask me what distracted me because I honestly don’t know but somehow I ended up looking at sustainable living/baby related sites.

Our kitchen has several plastic and glass (pyrex) storage containers but as part of my journey towards zero waste I’ve been wanting to get my hands on some leak proof stainless steel containers for getting meat from the butcher. I also wanted to get my own spork to go into my zero waste eating out kit instead of transporting a cutlery set (i.e. cut my kit back to a spork, straw and napkin, along with my sandwich wrap, jar of snacks and stainless steel drink bottle for longer trips out and about.

My original zero waste eat out kit... spoon, chopsticks, straw and napkin. I want to replace the normal sized spoon and chopsticks with a reasonable sized spork (a more flexible tool with less to carry around)
My original zero waste eat out kit… spoon, chopsticks, straw and napkin. I want to replace the normal sized spoon and chopsticks with a reasonable sized spork (a more flexible tool with less to carry around)

On one of the sites I ended up on I found a good special on both of these items so jumped in and bought myself 2 stainless steel containers (with BPA free lids that seal and a removable divider inside) and a bamboo spork.

My zero waste purchases
My zero waste purchases

I also bought my supplements online for the first time (calcium and folate), so now I’m waiting excitedly for my packages to arrive!

I’ve also started a list of things that I will need to consider buying in the near future. Because my wardrobe is now so minimal and I wear my favourite things most days, I’ve reached the point where things are starting to wear out.

Some of these things won’t be replaced, like the 2 dresses that reached the “I can see my undies through them” point in the last few weeks, because I have already decided I had more than I actually needed of these items.

I’m now down to 7 dresses. I wear dresses almost every day, all year round. Seven is probably still more than I need but as things wear out I consider whether I need to replace it or if something else I already own fills the same niche. I’m getting closer to the magical 33 Items recommended by Courtney Carver from Be More with Less in her Project 333 (I’m down to 36 items, excluding underwear, shoes, and accessories – scarves, jewellery, hats, etc).

Other things will need to be replaced, like undies. I bought 4 new pairs of undies from the local shops in July last year (bonds brand). These are already reaching the point where they’re starting to go see-through or holey. They’re also not very comfortable to wear anymore, riding up or falling down regularly.

My other 3 pairs of undies I bought online in March (2 months earlier) and they’re still going strong with no sign of being even close to worn out. They’re extremely comfy and actually function as pads (just add inserts) by themselves if you want them to. Last time I bought 3 pairs of the charcoal grey colour.

I want to keep some colour in my collection so I’m considering replacing the most uncomfortable ones I’ve got with more of the Maia Hipster Lunapanties but in other colours (one pair each of aquamarine, festival pink, and royal stripe).

The more uncomfortable ones are still ok at the moment, and the ones I want are reasonably expensive for underwear, so I’m going to hold off as long as I can (hopefully until the end of the challenge in 9 weeks).

I’m also going to need to replace my sandals at the end of summer. The inner lining tore the other week and although we have attempted to fix it the patch is already tearing as well so they’ll need to be replaced. I have worn them pretty much every hot day since October 2014 so I guess they’ve done their stint (probably equivalent to almost a year of daily wear).

I’m considering Birkenstock sandals like this or this because they’re meant to be long lasting, and sustainably and ethically made.

How do you decide when it’s time to let go of your favourite items?

*I have managed to do some work today which is great! I’ve been really stressed about how bad my ability to get things done has been, especially given I have commitments to meet.

Share Your World – Week 5

The questions this week have been very thought provoking and I’ve struggled with a few of them but here we go…

If you had a shelf for your three most special possessions (not including photos, electronic devices and things stored on them, people or animals), what would you put on it?

I don’t really focus much on ‘stuff’ and ‘possessions’ any more so I’ve struggled to think of 3 things that would go on the shelf.

I would definitely include my childhood teddy. He’s been through everything with me and he’s not going anywhere…

2014-12-16 18.55.58

The second thing I’d put on it is the old cigar box that currently holds my yearly letters to E. Starting from our wedding day I’ve written a letter to him each year as part of his anniversary gift.

The third thing I’d add would be my special jewellery… My engagement ring (was my great grandmothers) and wedding ring, my heart necklace (6-month dating anniversary gift from E) and my crystal necklace (also a family heirloom).

If you had a box labelled ‘happiness’, what would you put in it?

NOTHING, or a note that just says ‘Be Present’. I would use it as a reminder that happiness comes from within, not from external sources.

What do you want more of in your life?

I’m very happy (or as happy as I can be) with my life at the moment but I’d be happy if I was able to have more family time and less pain/health issues.

Daily Life List: What do you do on an average day? Make a list of your usual activities you do each day.

An average day… I was planning to do a day in my life style post like my friend Joy and Toni Bernhard anyway so I guess I’ll describe it here.

Wake Up time… Generally between 8 and 9 am (although the last few days I’ve woken earlier then fallen back to sleep). At this time I take a moment to scan my body and see what parts are hurting the most and the least (there’s never no pain so it’s more an assessment of how well the day is going to start).

While still lying in bed I do at least a 5 minute meditation before stretching and slowly sitting up. Most days I’ll take a shower (sitting on the floor to avoid falling over or making pains worse) and get dressed.

Breakfast is the next task to address. I make a cup of tea and see how much energy I have. Most days I just have a piece of fruit or something premade that’s easy to eat. When I have the energy I’ll make a cooked breakfast with veggies and eggs.

While the kettles boiling (and breakfast is cooking) I’ll do a short sun salutation. Just 5 minutes is enough to stretch out my muscles but it also wears me out again.

After eating breakfast it’s time for another rest so I’ll sit on the couch drinking my tea. I may browse Facebook on my phone.

After 10-15 minutes rest, I’ll read through some blogs for up to 30 minutes (usually closer to 15 minutes) then push the button that sends the robot vacuum on a round of the kitchen/family room and laundry.

I’ll clean the litter trays and then assess how I’m feeling.

If it’s a good day I’ll do an hour or two of work (writing blogs, working on consulting jobs) or spend some time cleaning up around the house with regular short rest breaks in between. If it’s a bad day I’ll put the tv on or listen to an audio book.

At around 11:30 I’ll start thinking about lunch. Generally this will either be left overs or a sweet potato which I throw in the oven with salt, pepper and oil and leave to bake for an hour.

After lunch I have a nap before either doing a bit more work/housework or putting the tv/audiobook back on.

Around 5 I start considering dinner. I slowly make dinner taking lots of rests and by the time E is home (generally between 6 and 7pm) dinner is ready to eat.

We eat and watch tv until around 9-9:30 when I take my medicines, floss and brush my teeth, shower and bed.

Bonus question:  What are you grateful for from last week, and what are you looking forward to in the week coming up?

I’m grateful that I’m able to live a slow life. Over the weekend E and I were able to slow down and just relax. I spent a whole morning listening to audiobooks while E was on the computer and doing things around the house, we visited family and we went for a slow walk in the local national park.

This week I’m looking forward to continue living slowly. Taking the time to enjoy the simple things like the warmth of the sun and the sound of the rain. I’m also looking forward to afternoon tea with Rach as a special mid-challenge catch up as part of our 20 week no-buy challenge.

A simple wardrobe with chronic illness

Another week down in the No Buy Challenge and another week of sticking to the goals. I’ve decided that instead of focusing my posts on the challenge each week (I will if there’s anything to update you on) I’d start doing some of the other posts I’ve been planning with just a short update at the beginning for the challenge.

So, as promised in earlier posts, today I’m focusing on my wardrobe.

Over the last few years I’ve become increasingly interested in reducing ‘clutter’ in our house. With limited energy, my ability to maintain the house to an ‘acceptable’ standard of cleanliness had dropped. All too often there were items lying over every conceivable surface in the house, washing piling up (dirty and clean) and dishes in the sink.

As part of my year of ‘Enough‘ last year, I spent a considerable amount of time removing a lot of the things and stuff that had built up but wasn’t actually needed, useful or loved. I have focused mainly on my own things, hoping to lead by example for E so my wardrobe was one area that got regular attention and I’m quite happy with the result.

There are many, many posts out there about how to create your own minimalist wardrobe, check out:

This is how I’ve modified the guidelines I read to suit my lifestyle and preferences.

An initial culling

When I first began my wardrobe clean out I pulled everything out of the cupboard and tried it all on with Janelle (my trusted friend) to assess what I liked and actually fit well and looked good. Anything that didn’t meet any of these criteria either got donated or thrown out depending on the state they were in.

Chose a colour scheme

I chose two main neutral colours – black and grey (I do still have a few white and brown items but mostly black and grey) – and two spectrums of accent colours blue/green and pink/purple. Anything that didn’t fit these colour schemes were donated, apart from my orange coat (A honeymoon purchase and my favourite winter coat).

Turned my coat hangers backwards

Last year I turned all my coat hangers around and only flipped them when I wore an item, anything not worn at the end of the year was donated. I found that all my short sleeved shirts are now gone, I tend to wear blouse style tops if I wear my suits, and I only have one long sleeved shirt.

Thanks to this process I now have room to hang everything, including jumpers, t-shirts and bottoms (were folded last year) so I’ve turned them all around again this year so I can assess how many of these items are actually worn throughout the year.

Pay attention to how I feel in each item

Throughout the year I donated several more dresses because they just weren’t comfortable, either they were too tight or they had zippers/buttons on them that were just not comfortable against my overly sensitive skin (a symptom of my Fibromyalgia).

Pay attention to what I wear most

A lot of the guides for minimalist wardrobes recommend X number of tops, X pants, X dresses, etc. This idea didn’t work for me.

I’ve found that because my tummy can (and does) bloat daily – going from almost flat to looking 5 months pregnant by the end of the day – I tend to wear dresses more often than any other item of clothing. I hardly ever wear skirts, jeans or pants any more – anything with a waist band that isn’t stretchy really.

As a result I only have one skirt, one pair of jeans (maternity jeans), two pairs of shorts (one stretch cotton), a pair of maternity leggings (worn almost daily in winter). In comparison, I have 9 dresses.

I also get really cold quickly so I have more items that I can layer such as cardigans, jackets, etc.

From 2 drawers + hanging to just hanging...
From 2 drawers + hanging to one row of hanging (shirts in foreground are E’s)

 

This wardrobe suits my life with chronic pain, limited energy, and daily fluctuations in body shape (bloating).

Maintain

To avoid a recurrence of wardrobe ‘clutter’ I’ve established some guidelines to maintain my wardrobe:

  • One in one out (for every new item that comes in an old item needs to leave the wardrobe)
  • Stick to colour scheme (any new items need to fit with my colour scheme)
  • Natural fibres (no wool) – my preference is for cotton or bamboo, I’m allergic to wool so none of that
  • Pockets! (Over half my dresses now have pockets and I’ve made a decision that any new dresses need to have them, this helps dramatically with reducing what comes in because there aren’t that many out there that do)

What items of clothing do you find yourself drawn to most days? Do you think you could live with a minimalist wardrobe?

Share Your World: Week 4

I can’t believe it’s almost the end of January already and we’re up to week 4 of 2016!

So far this year I’ve been struggling to maintain my balance. If I look at it from a week or month point of view I’m doing ok but on a daily basis I’m still struggling. Some days are crashed on the couch and unable to do anything much other than listen to an audio book or the tv in the background. Other days I’m rushed off my feet trying to do appointments and out of the house activities… I haven’t worked out the balance there yet.

It’s difficult for me to work out how to do this properly because I see the benefit of not having to drive more than once or twice a week (it’s still an activity that wears me out a lot) but then it means those days I am out I don’t manage to pace my step count, I don’t get my usual rest breaks, and I just over do it in general.

I’m also struggling to get any sort of regular routine in place for work activities. I’d love to be doing at least a minimum amount of work each week but Foggy Frog seems to be my constant companion again and he’s making it very hard for me to do anything for more than 5-10 minutes at a time with any hope of having reasonable results.

How do you pace yourself with activities outside the house or with adding in any work?

Anyway, being Thursday today, it’s time for another round of Share Your World.

Share Your World – Week 4

What one thing are you really glad you did yesterday?

Yesterday was one of those super full days where I over did it. That doesn’t mean there weren’t things I achieved that I’m really glad to have done though…

I managed to make it in to town to have lunch with E and one of his work colleagues before heading to the meeting I had in the afternoon. This is something that I really enjoy doing as it doesn’t happen very often these days unless I have a medical appointment in town.

Are you generally focused on today or tomorrow?

I do have a habit of focusing on things that I feel are important or scary that might be happening in the future but these days, thanks to the uncertainties related to my health, I’ve gotten a lot better at just focusing on one day at a time. Most weeks I don’t even look at my calendar in advance unless I’m booking something in. I might check it the night before when I’m getting ready for bed or when someone asks me what I’m doing.

Would you want a guardian angel/mentor? What would they tell you right now?

A mentor (or several mentors) provides inspiration, advice and guidance to help you succeed the best in life. Yes, I’d want that in my life and look up to several people in my life now as mentors.

Right now my mentor would be telling me to remember to be gentle with myself. As you might be able to tell from the last few posts I’m feeling very frustrated about my limitations at the moment. I’m wanting to do way more than my body will actually allow and I’m struggling to accept it. If my mentor was here right this minute they’d be reminding me that my health is the most important thing, without it I can’t do anything. They’d be telling me to continue to listen to my body and rest when I need to, to accept where I am at the moment, and to not set unrealistic expectations for myself.

Would you rather live in a cave house or a dome house made out of glass? (photos of the houses found on google search)

I love the idea of both but my dream house would be a dome house that’s built into the ground with lots of glass… something like this.

Bonus question:  What are you grateful for from last week, and what are you looking forward to in the week coming up?

I’m grateful for the understanding and support of the wonderful people in my life. I realised in the last few weeks that I’m not going to meet my deadline for one of my consulting jobs. When I contacted the client to let them know they’ve been very understanding and said there is no rush and to just work on it as quickly as I can.

Being able to spend time with my friends has also been very satisfying.

In the next week I’m looking forward to talking with my doctors about some test results I got in the last week and hopefully getting some guidance on how to approach the issues that have arisen (More to come in an upcoming post on this).

Share your World: Week 3

 

Today I’m seeing my doctor to follow up on the side effects and blood test results. I’m feeling very frustrated with myself lately. Thanks to the side effects I’ve been struggling to do any work, even writing these posts is taking me many times longer than normal.

Share Your World: Week 3

What is your favorite piece of art? (it doesn’t have to be famous)

I don’t really have an answer for this one as I tend to favour art work that has special meaning to me or that evoke emotion in me and there are several that fit that category. Looking around our house at the moment there are two that stand out to me…

2016-01-19 10.32.59

The first professional photo of me and E. This photo was taken almost 10 years ago. Every time I look at it, it makes me smile and feel good inside.

2016-01-19 10.28.47

This painting was a birthday present to me and E on our 30th birthday last year. It was painted by one of our friends and I love how simple it is. It hangs in our toilet and adds a point of interest to an otherwise boring room.

What made you smile today?

Watching the cats chase each other around the house. Cats can be very entertaining and also great therapy. When I’m feeling my worse and spend my time curled on the couch I love having them come and curl up with me.

wpid-IMG_20131205_114247.jpg

Which place do you recommend as a Must-See? Please state which country, state or providence.

Dangar Island, NSW, Australia.

wpid-IMG_20131206_145529.jpg

My Aunty lives on this wonderful island in the middle of the Hawkesbury River. It’s home to a few hundred locals while others have holiday homes on the island. Apart from the communal vehicles for maintenance and emergency services there are no cars on the island and you can only access it by ferry.

I love how peaceful it is on the island and the fact that there is such a communal feel.

Complete this sentence: When I was younger I used to….

hide in cupboards with my sister.

2016-01-19 11.00.50

Bonus question:  What are you grateful for from last week, and what are you looking forward to in the week coming up?

I was grateful for the opportunity to float in the ocean and spend time with family and friends. I’m hoping to make more beach trips this summer, especially given the fact that I’m meant to be doing more water based exercises at the moment.

I’m also grateful for having rediscovered my meditation mantra from last year, it’s been very helpful to me while I’m dealing with the extra symptoms and side effects.

May I/you be peaceful and true

May I/you have an open heart and open mind

May I/you be free from all suffering

This week I’m looking forward to getting some answers from my GP and taking the time to focus on recovering from the last weekend.